HDSA Giving Tuesday

Join us on Giving Tuesday — your gift helps unlock a $75,000 match and powers care, support, and research for HD families.

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2025 Amaryllis

The amaryllis is a symbol of strength and determination for the HD community. Place your orders TODAY!!

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Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy.

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HDSA Research Fellowships 2025 Berman- Topper Family HD Career Development Fellowship Recipient

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SAVE THE DATE!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

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FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

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#LetsTalkAboutHD with Ginger Hermes

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HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

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HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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Research Trial Now Recruiting at Venderbilt

The Roche/Genentech GENERATION HD2 Trial is testing a drug called tominersen for its safety and ability to lower harmful huntingtin protein. This study is recruiting at the HDSA Center of Excellence at Vanderbilt University in Nashville. You can also view this trial on HD Trialfinder for more information. Create an HD Trialfinder profile or re-match today to find more opportunities to participate near you.

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📣 Share your voice! Take the HDSA Strategic Plan Survey and help shape the future of our mission.

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