Do you have difficulty finding information to help you in your HD journey?
Check out the HDSA Tennessee Chapter Lending Library, a collection of materials that you may borrow at no cost.
Through a generous donation, the Tennessee Chapter has obtained materials that may helpful in your HD journey. You may request to borrow the materials and the chapter will send them to you at no cost. To request materials, send an email to TNChapterLendingLibrary@hotmail.com
with Material Request in the subject line. New materials are being added to the library.
Currently, you may make one selection from the following (click here
for descriptions of the materials by category):
⦁ A Hospice Chaplain's Fieldguide to Caregiving: Finding Resilience on the Frontlines of Love - E.M. Hager
⦁ A Husband's Guide to Hands-On Caregiving: Hard_Earned Lessons for Men and Women Caring for a Loved One at Home - Patrick Palmer
⦁ A Journey in Caregiving and How to Enjoy It - Sandra Kay Morris
⦁ Activities for the Family Caregiver: Huntington's Disease, How to Engage, How to Live - Scott Siknitter, et. al
⦁ Can You Help Me? Inside the Turbulent World of Huntington's Disease - Thomas D. Bird
⦁ Caregiver Landmines: And How You Can Avoid Them - Peter Rosenberger
⦁ Caregiving at a Glance - Insight Memory Care Center
⦁ Caregiving Both Ways: A Guide to Caring for a Loved One with Dementia (and Yourself) - Molly Wisniewski
⦁ Caregiving: How to Hold On While Letting Go - Debbie DeMoss Compton
⦁ Chicken Soup for the Caregiver's Soul: Stories to Inspire Caregivers in the Home, Community, and Community - Jack Canfield, Mark Victor Hansen, and LeAnn Thielman
⦁ Chicken Soup for the Grieving Soul: Stories About Life, Death, and Overcoming Loss of a Loved One
⦁ Chicken Soup for the Soul: Family Caregivers: 101 Stories of Love, Sacrifice, and Bonding
⦁ Chicken Soup for the Soul: Living with Alzheimer's and Other Dementias: 101 Stories of Caregiving, Coping, and Compassion - Amy Newmark, et al
⦁ Easy to Swallow, Easy-to-Chew Cookbook: Over 150 Tasty and Nutritious Recipes for People Who Have DIfficulty Swallowing - Paula Sullivan
⦁ Essential Puree - The A to Z Guidebook: 67 Delicious Recipes for the Dysphagia & Soft Food Diet - Diane Wolff
⦁ Grandma Has Huntington's Disease, and It's Okay -Kelsey M. Finn
⦁ Healing Your Grieving Heart for Kids: 100 Practical Ideas - Alan D. Wolfelt
⦁ Healing Your Grieving Heart for Teens: 100 Practical Ideas - Alan D. Wolfelt
⦁ Healing Your Grieving Heart When Someone You Care About Has Alzheimer's: 100 Practical Ideas for Families, Friends, and Caregivers - Alan D. Wolfelt PhD, et al
⦁ Homeward Journey - The Poetry of Leslie R. Foor.
⦁ Hope for the Caregiver: Encouraging Words to Strengthen Your Spirit - Peter Rosenberger
⦁ I Fight for Understanding: 31 Days of Coping with Huntington's Disease - Ginnievive Patch et al
⦁ In-Between Years - Steven Beatty
⦁ Inside The O’Briens - Lisa Genova
⦁ Is Daddy Ok – A Kids Look At Huntington’s Disease - Janet L. Howes
⦁ It’s Better to Laugh than Cry – A Family’s Struggle with Huntington’s Disease – Clarence Vos
⦁ Life Interrupted, Volumes 1 and 2: Living the Unimaginable - Help 4 HD International
⦁ Living with Huntington's Disease: What I've Learned as a Caregiver - Sharon McClellan, et al
⦁ Loving Someone Who Has Dementia: How to FInd Hope with Coping with Stress and Grief - Pauline Boss
⦁ Mapping Fate - Alice Wexler
⦁ Passages in Caregiving: Turning Chaos into Confidence - Gail Sheehy
⦁ Portraits of Huntington’s – Choosing Joy Through Life Lessons – Carmen Leal
⦁ Preparing Your Children for Goodbye: A Guidebook for Dying Parents - Lori A. Hedderman
⦁ Rare is Everywhere – Deborah Katz
⦁ Reflections of a Loving Partner: Caregiving at the End of Life - C. Andrew Martin
⦁ Saying Goodbye: A Guide to Coping with a Loved One's Terminal Illness - Barbara Okun, et al
⦁ Shattered Dreams But Hope – Perspectives on Being an HD Caregiver – Laquita M. Higgs and Elton D. Higgs
⦁ Surviving teh Holidays Without You: Navigating Grief During Special Seasons - Gary Roe
⦁ Talking To Kids About Huntington’s Disease – Dr. Bonnie L. Hennig-Trestman
⦁ Teen Grief: Caring for the Grieving Teenage Heart - Gary Roe
⦁ The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss - Nancy L. Mace, et. al
⦁ The Art and Science of Caregiving: Stories of Inspiring Elders with an End-of-Life Guidebook - Annelise Schinzinger
⦁ The Gift of Gerbert's Feathers - Meaghann Weaver MD MPH
⦁ The Gifts of Imperfection: Let Go of Who You Think You're Supposed to Be and Embrace Who You Are - Brene Brown
⦁ The Healing and Love Connection: Dancing with Elephants, A More Healing Way, Healing Justice - Jarem Sawatsky
⦁ The I Can't Chew Cookbook: Delicious Soft Diet Recipes for People with Chewing, Swallowing, and Dry Mouth Disorders - Randy Wilson and Mark A. Piper
⦁ The Invisible String - Patrice Karst
⦁ Think Outside the Blender: Great-Tasting and Healthy Recipes for Dysphagia Diets - Maria Quici
⦁ Thoughtful Dementia Care: Understanding the Dementia Experience - Jennifer Ghent-Fuller
⦁ Watching Their Dance – A Memoir – Therese Crutcher- Marin
⦁ Wear Comfortable Shoes: Surviving and Thriving as a Caregiver - Peter Rosenberger
⦁ When Reasoning No Longer Works: A Practical Guide for Caregivers Dealing with Dementia & Alzheimer's Care - Angel Smits
⦁ When Someone You Know Has Depression: Words to Say and Things to Do - Susan J. Noonan et al
⦁ Where Are You? A Child's Book About Loss - Laura Olivieri
⦁ You Me Everything: A Novel - Catherine Isaac
There are also a variety of materials and publications from the Family Guide Series published by the Huntington’s Disease Society of America available in our Chapter Lending Library that you may keep. Please inquire about HDSA publications at time of request.
Return to this page over the coming weeks and months to see the new materials that are being added.
We have a very limited amount of material and a very limited budget to replace material. Returning materials is very important to sustain this project. We would love to see this library continue and grow for many years. In order for us to reach and support as many families as possible, returning our material is the only way it will work. To ease the burden on families, the Chapter will pay for all returns when the items are returned using the supplied pre-paid return envelope.
How to Request Materials from the Lending Library
If you are requesting material from the Chapter Lending Library, you are willing to share your name, address, email address, and a working telephone number with the Tennessee Chapter. We need to know where to mail materials and how to follow-up if our materials are not returned. Your information will not be shared with anyone outside of the Chapter. Please be advised that you may receive a phone call and/or email from someone within the Chapter including but not limited to our Chapter Social Worker if materials are not returned within 5 weeks from the date of mailing. All requests for materials will be made to TnChapterLendingLibrary@hotmail.com
with Material Request in the subject line.
Since this is a new resource for the TN Chapter and the first ever Lending Library to ever be launched by any HDSA Chapter, please be aware that it could take a couple of business days to get the materials shipped.
Would you like to help sustain and grow the library?
There are three ways you can help.
1) If you have relevant informational materials you no longer need that you would like to donate, email us at TNChapterLendingLibrary@hotmail.com
. We will work with you to add the materials to the lending library.
2) You can mail a contribution by check to HDSA-Tennessee Chapter, P.O. Box 62, Brentwood, TN 37024. Write "Lending LIbrary" in the memo line.
3) We have selected some materials on Amazon Smile that you may purchase and have sent directly to us. Go to https://smile.amazon.com/ch/32-0532524
to see our charity list and make a purchase.
Your HDSA TN Chapter Volunteers