Connect with our local chapter:

Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) Tennessee Chapter. We are a part of HDSA's Southeast Region. We strive to provide support and information to Tennessee families affected by Huntington's disease. In support of this mission, we host a number of educational days each year and several fundraisers throughout the state.

 

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

 

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.

HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 50 Centers of Excellence across the United States.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page

Chapter President
Name: Eva Angelina Romero
Email: evaangelinahomes@gmail.com

Vice President
Name: Ryan Carter
Email: rcartervh@gmail.com

Middle Tennessee Walk Coordinator
Name: Gina Becker
Email: mtnwalk@walkforhd.org

Southeast Region Staff Contact
Name: Michal Biletzki, Regional Development Manager
Phone: (212) 242 -1968 x221
Email: mbiletzki@hdsa.org

For more information about the chapter or to volunteer to help us in our quest to provide help for today, hope for tomorrow, and improve the lives of people living with Huntington's disease, please feel free to contact us by email at tennessee@HDSAvolunteer.org or by mail:

Mailing Address:
P.O. Box 62
Brentwood, TN 37024


To contact the HDSA national helpline, please call 800-345-HDSA. The HDSA national helpline is open from 9:00 a.m. - 5:00 p.m. EST Monday through Friday.